Six months
It's been six months since Ellis's CI activation. It was actually 6 mos exactly a week ago, but I've been wanting to sit down and write a long, eloquent post, but it's just not going to happen, at least eloquence isn't. So I'll pound out some details just to keep them around.
Last Thurs in his speech therapy session at CHOP, Totally Awesome Therapist declared that Ellis was ready to graduate from Learning to Listen Sounds (like "choo-choo" for train) to actual words. So we're cycling back through a few consonants adding words. So far (in no particular order) we've done B, M, P, H, N, and W (with a variety of vowel combinations), and are now back on B for words.
He has good auditory discrimination (esp pitch and rhythm) and short-term auditory memory. He imitates speech ALL the time.
He has about 40 words expressively and receptively (speech that is, he's hundreds in sign, of course--we lost count over a year ago). It's funny to go through all these stages again, because I feel like we were just here...just in ASL.
Words he says (well, they aren't perfect, but the meaning is there). I'm going to record how he says them, because it's so cute (sorry if this is crazy pedantic, it's partly for my record, too):
stop (a silent "p", sometimes "op")
help (silent "hp")
ow
whee (as in going down a slide; this a Learning to Listen [LTL] sound)
yay (as in yippee!)
eww (as in yucky, dirty)
Mmm (as in yummy/eating; LTL)
pop (says "pop" but it's silent/whispered)
sssh (as in sleep; LTL. Actually he makes this by sort of blowing through his teeth, same with the "s" sound)
no (oh)
yes (yea)
more (mo)
hi (silent "h")
bye
open (oh)
go (oh)
wash (ba; can sometimes get a "wa" out of him, but he's hanging onto that B)
water (ba)
wet (ba; he signs with these, so I know which one it is)
jump (silent "p")
up
Daddy (aa-ee)
Poppy (my FIL, silent "pop")
baby (beebee)
eyes (long i sound)
nose (oh)
all done (ah-ba)
dirty (uh-ee)
hot (silent "ha")
juice (ooooh)
ball (ba)
beepbeep (as in car; LTL)
moo (as in cow; LTL. says "ooooh")
meow (as in cat; LTL. says "ow")
woofwoof (as in dog; LTL. says "woo, woo")
knock-knock (as in door; LTL. says "bah, bah")
choo-choo (as in train; LTL. says "ooo-ooooo")
aaah (as in airplane; LTL)
quack-quack (as in duck; LTL. says "ba, ba")
shoes (oooh)
wait (bee)
please (eee)
wow (bow)
I swear he said "ah-oo" for thank-you the other day, too.
He might not always get the consonant/vowels completely right, but the inflection is usually really close. I'm happy that he's getting the hang of this talking thing and seems to enjoy it. When his CI is on, I see him incorporating talking into his play independent of us, and that's really where a child's learning and internalizing takes place. It's sweet to hear his little voice saying "oo-ooo" over his wooden train track.
Thanks to his totally awesome bilingual classroom, though, he is still progressing marvelously in his signing skills. It's hard for me to sit here and make a list of what he's doing in sign, because by now it's such a natural part of our life. This is where we have conversations.
He reads books in ASL now, simple stories, like his favorite, Five Little Monkeys Jumping on the Bed (or any of the sequels). He doesn't use classifiers perfectly or anything (even I don't! top on my list of ASL Thing I Need to Finetune), but he's got the basic gist. He uses more descriptive signs all the time, like colors, feelings, fast/slow. One thing that I think is really cute is that in all the pictures he points out the little kid as him, an older male as Daddy, and an older female as Mommy. I think I make a nice Mommy monkey. :-)
He's still in love with his letters. He's nailed a few more handshapes (I and J are big accomplishments). He's SO cute the way he stops, makes the I, and carefully signs "noodle". He's only got one handshape left to grow into, W. He still makes a 4 instead.
And, get this!, he recognizes his printed name!! Can you believe it?! They're doing this at school, recognizing their own and their classmates printed names and fingerspelling them. We were at a parent-teacher meeting, and one teacher showed us this and held up some random kid's name (only letters, no pictures), and E glanced up and did her name sign. We were so surprised! haha!
We have our first meeting to transition him to an IEP in a couple of weeks. He will be turning 3 in June. I'm really not looking forward to this. If you have any advice about making IEPs say what you want them to say, please let me know. I have a couple of books I'm looking through, so that I'll at least know what we're legally entitled to.
So that's Ellis News, the Quick and Dry Edition. I wish I had a fun movie for you, but life is so fleeting around an super, speedy-fast 2.5 yo.
Comments
Good progress! Now my 2 1/2 child is speaking 3-4 words sentences and is fluent in ASL as well. It s been about 20 months since her CI activation. 8 Monkeys Jumping on the Bed is one of our favorite books, too! Can anyone give us tips on the IEP?
Posted by: Deaf Parent | January 31, 2008 11:58 PM
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Thanks for sharing...About IEP tips, I would use the website: http://www.deafchildren.org/resources.aspx
and click on What's the IDEA About the Individualized Education Program (IEP)?
For starters, I would request to have a bilingual specialist or an ASL specialist who is able to teach ASL grammatical features to enhance language development especially during pre-school age that they will be able to bridge to English much more effectively in the IEP.
Please take a peek at
http://deafbilingual.blogspot.com/2008/01/reponse-to-paulas-questions.html
to give you more ideas about facilitating language development (ASL and English).
Posted by: Barb DiGi | February 1, 2008 12:34 AM
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Ooops, I meant about 8 months since her activation, not 20 months.
Barb, thanks for the info. on the IEP. School for the deaf teachers do visit my child regularly teaching her both ASL and spoken English.
Posted by: Deaf Parent | February 1, 2008 12:41 AM
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That's a good point, Barb, about having an ASL specialist. I made note of that some time ago when I went to a presentation on bi/bi education, but it's good to be reminded.
Posted by: Jeannette | February 1, 2008 08:55 AM
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Wow- what amazing progress E has made!
Posted by: anilia | February 1, 2008 09:15 AM
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It sounds as if Ellis is doing wonderfully well with his spoken language skills. How exciting for you all! It would be great if my son knew more sign, but our focus on the oral part of it all and my lack of knowledge in sign is definitely holding us back...not to forget the lack of resources in rural MT! We have no TODs, only one sign instructor, and we rely on the help of professionals that have no previous CI experience, but thanks to mothers like you and all of the great online support groups, we'll get there!! Thanks for sharing E's progress!!! Keep up the good work!
Posted by: Tiffany - Tayten's Mommy | February 1, 2008 01:15 PM
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You should talk to my MIL about IEPs. She would have a lot of helpful info.
Posted by: Em | February 1, 2008 05:12 PM
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As a special ed teacher, IEPs are a major part of my job. However, I do not have any students on my caseload who are hearing impaired or deaf. So, I only have general tips. I'm sure you've had practice w/ this already, but don't be afraid to ask questions about what things mean-- we use a LOT of jargon in this field and tend to forget to explain ourselves & the paperwork. Make sure you get your "procedural safeguards" packet that details your list of rights. Also, don't hesitate to ask for the IEP team to re-convene if you have concerns about the way things are going (that's more paperwork for us, but it is your right to meet more often than just for the annual mtg). Also, don't be intimidated by the number of people in the room-- you are the expert on your child! If you have any questions I'd love to be of help if I can. I'm a covenant alum that you may or may not remember, and I've followed your blog for awhile now.
:)A
Posted by: Abby | February 1, 2008 06:10 PM
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I just happened to come across your blog and noticed that your little guy goes to CHOP, I just had my CI surgery done next door at HUP back in August. Ellis has a couple months on me :) He seems to be doing wonderfully though!! !
Posted by: Abbie | February 1, 2008 06:24 PM
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Good job Ellis and mommy and daddy! He is doing so well only 6 months post activation! I'm thoroughly impressed with the sign language skills too.
Posted by: Hetha | February 1, 2008 06:31 PM
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What an IEP did for me as a teacher was to legitimize treating this child as This Child, and not exactly like everybody else. It's also a bit of a paper trail for teachers to follow so they know things about the child which they otherwise might not. But I never made them up, obviously, I was just getting the paper trail. The reverse is true. Without the EIP I was Required to treat that child like any other child, with the same expectations. Tjose are my 2 bits. I would 'Amen' to the earlier writer. You are your child's best advocate.
Posted by: mom1 | February 2, 2008 08:58 PM
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Oh, wow! It's amazing to get glimpses of this. And soooo sweet to have the reminders of this stage of development with an older toddler/preschooler. *mush, mush*
Posted by: TulipGirl | February 3, 2008 10:46 AM